St. Louis Parkinson's Disease Support Groups

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posted by Ted Ryan on August 26, 2014

In the United States, there are as many as one million individuals living with Parkinson’s disease.

The disease has gained national attention through the inspirational career comeback of Michael J. Fox and, more recently, tragic loss of Robin Williams. These two also exemplify the difference that having a strong support group can make.

St. Louis’ Parkinson Disease Association Center is one of the largest in the country and offers many support groups that meet at varying locations and times, which we have listed below.
 

City Meeting Site Day of Meeting Time Phone
Ballwin Meramec Bluffs Care Center
40 Meramec Trails Dr., Activities Rm.
4th Tuesday 2:00pm 636-923-2364
Chesterfield APDA Community Resource Center
1415 Elbridge Payne, Suite 150
1st Tuesday 10:30am 636-532-6504
636-537-3761
Chesterfield (For Caregivers Only)
APDA Community Resource Center
1415 Elbridge Payne, Suite 150
2nd Monday 10:30am 314-362-3299
Creve Coeur Pre/Post-DBS Group
Missouri Baptist Medical Center
3015 N. Ballas, Main Parking Garage
4th Floor, CLI Rm. 419
3rd Tuesday 6:30pm 314-614-0182
Creve Coeur Young Onset Living and Working with PD
Missouri Baptist Medical Center
3015 N. Ballas, Main Parking Garage
4th Floor, CLI Rm. 419
3rd Tuesday 6:30pm 314-306-4516
Florissant Garden Villas North
4505 Parker Rd.
4th Thursday 11:00am 314-869-5296
Kirkwood Kirkwood United Methodist Church
201 W. Adams, Room 201
4th Tuesday 7:15pm 314-286-2418
Ladue The Gatesworth
1 McKnight Place
2nd Wednesday 1:00pm 314-372-2369
South St. Louis Garden Villas South
13457 Tesson Ferry Rd.
2nd Wednesday 10:00am 314-846-5919
Webster Groves Bethesda Institute
8175 Big Bend Blvd., Suite 210
Last Friday 10:30am 314-373-7036



Home care companies such as SHC are often a very beneficial part of a support group, offering expertise and respite to family caregivers.

I asked SHC’s nursing department for their input. They explained that, in addition to the other services SHC provides, there are three main focuses when caring for an individual with Parkinson’s disease.
 

  1. Exercise. This maintains strength and promotes independence.
  2. Consistent medication regimen. It’s very important to get the proper medications on a regular basis.
  3. Education about fall prevention. Falls are a particular risk to individuals with Parkinson’s. Knowledge is a key to avoiding an incident.


If we may be of any assistance to you or someone you know, please contact us. We’re here to help.

For details and up-to-date information about St. Louis Parkinson's disease programs, or to register online, click here.

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Caregiving and Community Connection
  1. Lyle Gibson

    Lyle Gibson

    June 02, 2016

    If anyone is looking for a motivational speaker,please call or email me. I’ve written a top selling book recognized by the Michael J.Fox Foundation and the World’s Parkinson Congress and have been speaking quite often. I truly enjoy getting out meeting people and encourage them to stay in motion in an effort to help manage Parkinson’spllp botch physically and mentally. My book is titled "A Lifetime in Motion: Lesson Learned From a Student of the Game(s). Found on Amazon. Would love to hear from someone. Lyle M. Gibson

  2. Dr. C.

    Dr. C.

    August 20, 2020

    I write a weekly column on PD for ParkinsonsNewsToday. We just moved to the St Louis region. We would like to attend support groups when they open up again. Who can we contact?

  3. Robert Charles

    Robert Charles

    March 26, 2021

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  4. Bonnie Chismar

    Bonnie Chismar

    April 03, 2023

    My husband who had been diagnosed with Parkinson’s disease for 2 years at the age of 63 had all his symptoms reversed with Ayurveda medicine from natural herbs centre. com after undergoing their Parkinson’s natural protocol. God Bless all Parkinson’s Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

  5. Patti Manners

    Patti Manners

    November 12, 2024

    I’m a caregiver for my HWP. I wanted to inform PWP that there’s hope, the binehealthcenter . co m has been of great help. the PD-5 treatment programme they offer has completely help with reversing my husband Parkinson’s symptoms.

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